Support network and social support for children with special health care need

Abstract

Objective: to understand and identify the support network and social support from the perspective of familiesof children with chronic conditions. Methods: a qualitative study, with content analysis of 134 records, followedby ten semi-structured interviews. Results: the analysis has revealed that the primary caregiver, the mother,participates in a network of limited support, only with the help of her husband, children, grandparents and thechild ́s godparents. They also have a social network through a multidisciplinary team, which in some cases isnot effective. Conclusion: families have a deficient and limited support network and the demand for care relyonly on the support of the husband, grandparents, children, and godparents. Social networking refers to thephilanthropic institutions, while the aid of public service, basic health unit is basic.