The perception of ostomized patients with colorectal cancer regarding their quality of life
DOI:
https://doi.org/10.15253/2175-6783.20202143946Keywords:
Colorectal Neoplasms; Ostomy; Quality of Life; Qualitative Research; Philosophy.Abstract
Objective: to understanding the perception of ostomized patients affected by colorectal neoplasms regarding their quality of life. Methods: qualitative research, with 15 patients in outpatient treatment. Data collected through semi-structured interviews. To organize and present data, the content analysis technique was used. Data were interpreted according to the social phenomenology of Alfred Schutz. Results: three thematic categories emerged: Quality of life: social, psychic, and spiritual influences; Personal and environmental adaptations considering the new reality; and Complications of living with an ostomy. Conclusion: patients with ostomies resulting from colorectal cancer, in general, have variations in the way they perceive their quality of life. In the physical domain, they consider the device to be vital in the treatment, but it generated, a priori, social isolation, due to embarrassment, requiring them to adapt to the new reality as to diminish its emotional impact, which frequently presents in the form of sadness and non-acceptance.
References
Mallmann GDP, Ceccon L, Felix RP, Dargel VA, Fillmann LS. Câncer colorretal. Acta Méd [Internet]. 2017 [cited Apr 4, 2020]; 38(7):149-58. Available from: https://editora.pucrs.br/acessolivre/periodicos/acta-medica/assets/edicoes/2017-2/arquivos/pdf/14.pdf
Dekker E, Tanis PJ, Vleugels JLA, Kasi PM, Wallace MB. Colorectal cancer. Lancet. 2019; 394(10207):1467-80. doi: https://doi.org/10.1016/S0140-6736(19)32319-0
Instituto Nacional do Câncer. Estatísticas de câncer [Internet]. 2020 [cited Apr 4, 2020]. Available from:https://www.inca.gov.br/numeros-de-cancer
Pereira APS, Cesarino CB, Martins MRI, Pinto MH, Netinho JG. Associations among socio-demographic and clinical factors and the quality of life of ostomized patients. Rev Latino-Am Enfermagem. 2012; 20(1):93-100. doi: http://dx.doi.org/10.1590/S0104-11692012000100013
Faria FL, Labre MM, Sousa IF, Almeida RJ. Avaliação da qualidade de vida em pacientes com ostomias intestinais. Arq Ciênc Saúde. 2018; 25(2):8-14. doi: https://doi.org/10.17696/2318-3691.25.2.2018.924
Silva ES, Castro DS, Romero WG, Garcia TR, Primo CC. Nursing protocol for psychosocial and spiritual alterations of the person with colostomy. Cogitare Enferm. 2015. 20(3):467-74. doi: http://dx.doi.org/10.5380/ce.v20i3.40664
Nascimento LC, Souza TV, Oliveira ICS, Moraes JRMM, Aguiar RCB, Silva LF. Theoretical saturation in qualitative research: an experience report in interview with schoolchildren. Rev Bras Enferm. 2018; 71(1):228-33. doi: https://dx.doi.org/10.1590/0034-7167-2016-0616
Bardin L. Análise de conteúdo. Lisboa: Edições 70; 2016.
The WHOQOL Group. The World Health Organization quality of life assessment: position paper from the World Health Organization. Soc Sci Med. 1995; 41(10):1403-9. doi: https://doi.org/10.1016/0277-9536(95)00112-K
Schutz A. Fenomenologia e relações sociais. Rio de Janeiró: Zahar; 2012.
Aguiar FAS, Jesus BP, Rocha FC, Cruz IB, Andrade Neto GR, Rios BRM, et al. Colostomy and self-care: meanings for ostomized patients. Rev Enferm UFPE on line [Internet]. 2019 [cited Apr 4, 2020]; 13(1):105-10. Available from: https://periodicos.ufpe.br/revistas/revistaenfermagem/article/view/236771/31134
Nieves BC, Diaz CC, Celdrán-Mañas M, Moralles-Asencio JM, Hernández-Zambrano SM, Hueso-Montoro C. Ostomy patients’ perception of the health care received. Rev Latino-Am Enfermagem. 2017; 25:e2961. doi: https://doi.org/10.1590/1518-8345.2059.2961
Rodrigues HA, Bicalho EAG, Oliveira RF. Cuidados de enfermagem em pacientes ostomizados: uma revisão integrativa de literatura. Rev Psicol Saúde Debate. 2019; 5(1):110-20. doi: https://doi.org/10.22289/2446-922X.V5N1A9
Machado LG, Silva RM, Siqueira FD, Girardon-Perlini NMO, Silva MEN, Vasconcellos RO. Desafios do usuário frente a estomia: entre o real e o almejado. Rev Nurs [Internet]. 2019 [cited Apr 4, 2020]; 22(253):2962-6. Available from: http://www.revistanursing.com.br/revistas/253/pg70.pdf
Feitosa YS, Sampaio LRL, Moreira DAA, Mendonça FAC, Carvalho TB, Moreira TMM, et al. Necessidade real do doente: perceção de pessoas com ostomias intestinais sobre os fatores associados às complicações. Rev Enf Ref. 2019; série IV(22):63-72. doi: http://dx.doi.org/10.12707/RIV19025
Cerqueira LCN, Cacholi SAB, Nascimento VS, Koeppe GBO, Torres VCP, Oliveira PP. Clinical and sociodemographic characterization of ostomized patients treated at a referral center. Rev Rene. 2020; 21:e42145. doi: https://doi.org/10.15253/2175-6783.20202142145
Downloads
Published
How to Cite
Issue
Section
License
Copyright (c) 2020 Rev Rene
This work is licensed under a Creative Commons Attribution 4.0 International License.