Access to the care network by children and adolescents with special health needs

Keywords: Health Services Accessibility; Disabled Persons; Child Health; Adolescent Health.


Objective: to understand the access to the care network for children and adolescents with special needs from the perspective of professionals. Methods: qualitative study carried out in an Association of Parents and Friends of Exceptional Children. The semi-structured interview was used,with representation through the cloud of words. Participated in the research 11 professionals who work in health care and special education. Results: from the professionals’ perspective, the access to the network of care for children and adolescents comes from the special care and education offered by the Association. The participants highlighted the difficulties of access of children and adolescents to health services and the diversity of activities used so that they can socialize, interact, and form bonds. Conclusion: the access of children and adolescents to the attention network occurs through the services of the Association, represented by the clinic for health care and the school for development and social inclusion.


Góes FGB, Cabral IE. Discourses on discharge care for children with special healthcare needs. Rev Bras Enferm. 2017; 70(1):154-61. doi:

Monnerat CP, Silva LF, Souza DK, Aguiar RCB, Cursino EG, Pacheco STA. Health education strategy with family members of children in continuous medication. Rev Enferm UFPE on line [Internet]. 2016 [cited Jan 19, 2021]; 10(11):3814-22. Available from:

Precce ML, Moraes JRMM, Pacheco STA, Silva LF, Conceição DS, Rodrigues EC. Educational demands of families of children with special health care needs in the transition from hospital to home. Rev Bras Enferm. 2020; 73(Suppl 4):e20190156. doi:

Nunes CK, Olschowsky A, Silva AB, Kantorski LP, Coimbra VCC. Mental health in children and adolescents: vision of the professionals on challenges and possibilities in building up intersectoral networks. Rev Gaúcha Enferm. 2019; 40:e20180432. doi:

Chavez GM, Rennó HMS, Viegas SMF. The inter-relation of demand and accessibility in the Family Health Strategy. Physis Rev Saúde Coletiva. 2020; 30(3):300-20. doi:

Neves ET, Okido ACC, Buboltz FL, Santos RP, Lima RAG. Accessibility of children with special health needs to the health care network. Rev Bras Enferm. 2019; 72(Supl 3):65-71. doi:

Silveira A, Alves BTG, Elauterio MP, Silva FO, Costa YS, Souza NS. Development of children and teenagers with special health needs. Rev Cont Saúde [Internet]. 2020 [cited Jan 19, 2021]; 20(38):185-90. Available from:

Nascimento LCN, Souza TV, Oliveira ICS, Moraes JRMM, Aguiar RCB, Silva LF. Theoretical saturation in qualitative research: an experience report in interview with schoolchildren. Rev Bras Enferm. 2018; 71(1):228-33. doi:

Bardin L. Análise de conteúdo. São Paulo: Edições 70, 2016.

Prais JLS, Rosa VF. Clouds word and conceptual map: strategies and technological resources in pedagogical practice. Rev Nuances. 2017; 28(1):201-19. doi:

Lima H, Oliveira D, Bertoldo C, Neves ET. (De)constitution of the healthcare network of children/adolescents with special health care needs. 2021; Rev Enferm UFSM. 11:e40. doi:

Nóbrega VM, Silva MEA, Fernandes LTB, Viera CS, Reichert APS, Collet N. Chronic disease in childhood and adolescence: continuity of care in the Health Care Network. Rev Esc Enferm USP. 2017; 51:e03226. doi:

Silva RMM, Toso BRGO, Neves ET, Moura CB, Viera CS. Longitudinality in child health care in the context of primary care. Rev Enferm UFPE on line [Internet]. 2017 [cited Jan 25, 2021]; 11(5):1909-17. Available from:

Silveira A, Nicorena BPB. Speaking map of children with special needs in the voice of mothers caregivers. Rev Cont Saúde [Internet]. 2020 [cited Jan 21, 2021]; 20(40):181-8. Available from:

Luz RO, Pieszak GM, Arrué AM, Gomes GC, Neves ET, Rodrigues AP. Therapeutic itinerary of families of children with special health needs. Rev Rene. 2019; 20:e33937. doi:

Oliveira SM, Gomes GC, Xavier DM, Pintanel AC, Montesó MP, Rocha LP. Contexts of care for children/adolescents with diabetes mellitus: a socio-environmental approach. Aquichan. 2018; 18(1):69-79. doi:

Huang L, Freed GL, Dalziel K. Children with special health care needs: how special are their health care needs? Acad Pediatr. 2020; 20(8):1109-15. doi:

Ferreira T, Falcão A, Oliveira A, Rolim RO, Pereira V. Intervenção precoce e a participação da família: relato de profissionais de APAES. Rev Educ Esp. 2019; 32:1-20. doi:

Resende DCP. A importância da ludicidade na educação especial inclusive. Pedag Ação [Internet]. 2018 [cited Aug 2, 2021]; 10(2):71-82. Available from:

Roman SB, Dworkin PH, Dickinson P, Rogers SC. Analysis of care coordination needs for families of children with special health care needs. J Dev Behav Pediatr. 2020; 41(1):58-64. doi:

How to Cite
Bueno, T. de V., Silveira, A. da, Centenaro, A. P. F. C., Cabral, F. B., & Costa, M. C. da. (2022). Access to the care network by children and adolescents with special health needs. Rev Rene, 23, e71313.
Research Article