Coping familiar no cuidado à criança com síndrome de Down: revisão de escopo

Meriele Sabrina de Souza; Márcia Christina Caetano Romano; Patrícia Peres de Oliveira; Elysângela Dittz Duarte; Patrícia Pinto Braga

doi:10.15253/2175-6783.20242592092

Authors

Meriele Sabrina de Souza Universidade Federal de São João del Rei https://orcid.org/0000-0003-2948-4304
Márcia Christina Caetano Romano Universidade Federal de São João del Rei https://orcid.org/0000-0002-1819-4689
Patrícia Peres de Oliveira Universidade Federal de São João del Rei https://orcid.org/0000-0002-0325-4917
Elysângela Dittz Duarte Universidade Federal de Minas Gerais https://orcid.org/0000-0001-8170-7523
Patrícia Pinto Braga Universidade Federal de São João del Rei https://orcid.org/0000-0002-1756-9186

DOI:

https://doi.org/10.15253/2175-6783.20242592092

Keywords:

Child; Down Syndrome; Adaptation, Psychological; Family; Pediatric Nursing.

Abstract

Objective: to map the coping strategies that contribute to family care for children with Down syndrome. Methods: scoping review, using the JBI method. Six electronic databases and a virtual library were consulted with the support of the Rayyan platform. The criteria for eligibility were studies available and published in full, which addressed coping strategies in family care for children with Down syndrome. Data analysis was of the narrative type. Results: 381 records were retrieved and 14 remained in this review. Six coping styles were identified: managing emotions, decision-making, acquiring knowledge about Down's syndrome and situations involving it, seeking support, communicating within the family and with professionals, and practicing spirituality. Conclusion: in order to balance the demands presented by the children and the resources available, family members need to adopt cognitive and behavioral strategies to deal with the adversities of caring for a child with Down syndrome. Contributions to practice: the study presents evidence to guide nurses and other health professionals to help families use different ways of coping with the stressful events they experience.

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