Family members of children exposed to Human Immunodeficiency Virus: satisfaction with social support

Authors

DOI:

https://doi.org/10.15253/2175-6783.20212261086

Keywords:

Infectious Disease Transmission, Vertical; HIV; Social Support; Caregivers; Child Health.

Abstract

Objective: to analyze the satisfaction of family members with the social support received during the care of children exposed to human immunodeficiency virus. Methods: cross-sectional study with 87 relatives of these children, in a university hospital. The Satisfaction with Social Support Scale was used. Sociodemographic and clinical variables were analyzed using the Lilliefors, Kruskal-Wallis and Mann-Whitney tests. Results: the participants, mostly mothers, showed high satisfaction with the total social support (57 out of 75 points). The average indicated that the satisfaction was high for the support received from the family (80.46), followed by that provided by friendships (72.86) and intimacy (63.36) and low for social activities (55.65). The group classified with income up to R$879.00 presented less satisfaction with social support (average=50,83) if compared with the group of income superior to R$879.00 (average=58,78) (p=0,014). Conclusion: the satisfaction with the social support of the relatives is high and influenced by income.

References

Alvarenga WA, Galvão MTG, Nascimento LC, Beretta MIR, Dupas G. Weakened social network: the experience of caregivers of the HIV-exposed infant. Texto Contexto Enferm. 2015; 24(3):775-83. doi: http://doi.org/10.1590/0104-07072015011160014

Blanche S. Mini review: prevention of mother-child transmission of HIV: 25 years of continuous progress toward the eradication of pediatric AIDS? Virulence. 2020; 11(1):14-22. doi: https://doi.org/10.1080/21505594.2019.1697136

Murray SM, Famliar I, Nakasujja N, Winch PJ, Gallo J, Opoka R, et al. Caregiver mental health and HIV-infected child wellness: perspectives from Ugandan caregivers. AIDS Care. 2017; 29(6):793-9. doi: https://doi.org/10.1080/09540121.2016.1263722

Costa AR, Nobre CMG, Gomes GC, Alvarez SQ, Ribeiro JP, Rosa GSM. Difficulties encountered by families in caring for children or adolescents with HIV. Rev Enferm UERJ. 2019; 27:e42264. doi: https://doi.org/10.12957/reuerj.2019.42264

Cobb S. Social support as a moderate of life stress. Psychosomatic Med. 1976; 38(5):300-14. doi: https://doi.org/10.1097/00006842-197609000-00003

Pais-Ribeiro JL. Escala de satisfação com o suporte social (ESSS). Anál Psicol [Internet]. 1993 [cited Mar 3, 2020]; (17):547-58. Disponível em: http://www.scielo.mec.pt/pdf/aps/v17n3/v17n3a10.pdf

Marôco JP, Campos JADB, Vinagre MG, Pais-Ribeiro J. Adaptação transcultural Brasil-Portugal da Escala de satisfação com o suporte social para estudantes do ensino superior. Psicol Reflex Crít. 2014; 27(2):247-56. doi: http://dx.doi.org/10.1590/1678-7153.201427205

Lima TJS, Souza LEC. O suporte social como fator de proteção para as mães de crianças com Síndrome da Zika Congênita. Cienc Saúde Coletiva [Internet]. 2020 [cited Aug 13, 2020]. Available from: http://www.cienciaesaudecoletiva.com.br/artigos/o-suporte-social-como-fator-de-protecao-para-as-maes-de-criancas-com-sindrome-da-zika-congenita/17638?id=17638

Durgante VL, Budó MLD, Guido LA. Women with aids: availability and satisfaction with social support. Cienc Cuid Saúde. 2015; 14(1):814-21. doi:https://doi.org/10.4025/cienccuidsaude.v14i1.19934

Pedrosa SC, Fiuza MLT, Cunha GH, Reis RK, Gir E, Galvão MTG, et al. Social support for people living with acquired immunodeficiency syndrome. Texto Contexto Enferm. 2016; 25(4):e2030015. doi:http://dx.doi.org/10.1590/0104-07072016002030015

Gaino LV, Almeida LI, Oliveira J L, Nievas AF, Saint-Arnault D, Souza J. The role of social support in the psychological illness of women. Rev Latino-Am Enfermagem. 2019; 27:e3157. doi: https://doi.org/10.1590/1518-8345.2877.3157

Fernandes PKRS, Miranda KCL, Rodrigues DP, Vasconcelos LDP. HIV diagnostic disclosure in prenatal care: women’s difficulties and coping strategies. Rev Enferm UERJ. 2017; 25:e12114. doi: http://dx.doi.org/10.12957/reuerj.2017.12114

Pinho LG, Pereira A, Chaves C, Rocha ML. Satisfação com o suporte social e qualidade de vida dos doentes com esquizofrenia. Rev Port Enferm Saúde Mental [Internet]. 2017 [cited Apr 8, 2020];5:33-8. doi: https://dx.doi.org/10.19131/rpesm.0164

Levandowski DC, Pereira MD, Maia GN, Schunk, LM, Sanches IR. Maternidade e HIV: revisão da literatura brasileira (2000–2014). Arq Bras Psicol [Internet]. 2017 [cited Mai 10, 2020]; 69(2):34-51. Available from: http://pepsic.bvsalud.org/pdf/arbp/v69n2/04.pdf

Pacheco BP, Gomes GC, Xavier DM, Nobre CMG, Aquino DR. Difficulties and facilities of the family to care for children with HIV/Aids. Esc Anna Nery. 2017; 20(2):378-83. doi: https://dx.doi.org/10.5935/1414-8145.20160052

Silva AN, Santos AMG, Cortez EA, Cordeiro BC. The family’s role as a support network for people living with HIV/AIDS: a review of Brazilian research into the theme. Ciênc Saúde Coletiva. 2015; 20(4):1109-18. doi: http://dx.doi.org/10.1590/1413-81232015204.17932013

Lara MM, Gomes GC, Nobre CMG, Jung BC, Costa AR, Rodrigues. Perception of the family caregiver regarding problems faced by children in relation to their diagnosis of HIV/aids. Cogitare Enferm. 2017; 22(4):e50882. doi: https://dx.doi.org/10.5380/ce.v22i4.50882

Bick MA, Ferreira T, Sampaio CO, Padoin SMM, Paula CC. Profile of infected pregnant women and children exposed to HIV at a specialized service in the South of Brazil. Rev Bras Saúde Mater Infant. 2018; 18(4):791-801. doi: https://doi.org/10.1590/1806-93042018000400007

Published

2021-02-23

How to Cite

Hausen, C. F., Quadros, J. S. de, Bick, M. A. ., Ceretta, P. S. ., Langendorf, T. F., Padoin, S. M. de M., & Paula, C. C. de. (2021). Family members of children exposed to Human Immunodeficiency Virus: satisfaction with social support. Rev Rene, 22, e61086. https://doi.org/10.15253/2175-6783.20212261086

Issue

Section

Research Article

Most read articles by the same author(s)

1 2 > >>