Percepção de cuidadores acerca da preparação para o cuidar de crianças com doenças crônicas

Rebecca Camurça  Torquato; Giselle Pereira  Rovere; Mardênia Gomes Vasconcelos  Pitombeira; Aline de Souza Pereira; Luciana Kelly Ximenes dos  Santos

doi:10.15253/2175-6783.20202143870

Authors

Rebecca Camurça Torquato Escola de Saúde Pública do Ceará http://orcid.org/0000-0003-2321-5904
Giselle Pereira Rovere Hospital Infantil Albert Sabin https://orcid.org/0000-0002-8608-1520
Mardênia Gomes Vasconcelos Pitombeira Universidade Estadual do Ceará https://orcid.org/0000-0003-2969-6526
Aline de Souza Pereira Centro Universitário Christus https://orcid.org/0000-0001-9316-5987
Luciana Kelly Ximenes dos Santos Hospital Infantil Albert Sabin https://orcid.org/0000-0001-8401-6787

DOI:

https://doi.org/10.15253/2175-6783.20202143870

Keywords:

Nursing Care; Pediatric Nursing; Chronic Disease.

Abstract

Objective: to describe the caregivers' perception of preparation to care for children with chronic diseases. Methods: qualitative research, carried out with nine caregivers in a home transition unit in a tertiary hospital. Semi-structured interviews were used to obtain the data, and the content analysis technique was used to describe the results. Results: with the qualitative material analysis process, the main perceptions of the reported care were obtained: Knowing the Care Unit; Training, learning and guidance and Difficulties faced. Conclusion: the preparation for the care of children with chronic diseases is complex and was perceived as a fundamental step towards leaving hospital, requiring from these caregivers donation and effort to face this process.

References

Hilkner SM, Beck ARM, Tanaka EZ, Dini AP. Perceptions of children’s siblings hospitalized for chronic disease. Rev Enf Ref. 2019; IV(20):77-86. doi: http://dx.doi.org/10.12707/riv18074

Moreira MCN, Albernaz LV, Sá MRC, Correia RF, Tanabe RF. Guidelines for a line of care for children and adolescents with complex chronic health conditions. Cad Saúde Pública. 2017; 33(11):e00189516. doi: https://doi.org/10.1590/0102-311x00189516

Salvador MS, Gomes GC, Oliveira PK, Gomes VLO, Busanello J, Xavier DM. Strategies of families in the care of children with chronic diseases. Texto Contexto Enferm. 2015; 24(3):662-9. doi: https://doi.org/10.1590/0104-07072015000300014

Simonasse MF, Moraes JRMM. Children with special health care needs: impact on familiar daily routine. Rev Pesqui Fundam Care Online. 2015; 7(3):2902-9. doi: https://doi.org/10.9789/2175-5361.2015.v7i3.2902-2909

Azevêdo AVS, Lançoni Júnior AC, Crepaldi MA. Nursing team, family and hospitalized child interaction: an integrative review. Cienc Saúde Coletiva. 2017; 22(11):3653-66. doi: https://doi.org/10.1590/1413-812320172211.26362015

Cruz CT, Zambelan KC, Silveira A, Buboltz FL, Silva JH, Neves ET. Care to children requiring continuous and complex assistance: nursing perception. Rev Min Enferm. 2017; 21:e1005. doi: http://dx.doi.org/10.5935/1415-2762.20170015

Ministério da Saúde (BR). Portaria nº 1.130 de 5 de agosto de 2015: institui a Política Nacional de Atenção Integral à Saúde da Criança (PNAISC) no âmbito do Sistema Único de Saúde (SUS) [Internet]. 2015 [cited Mai 29, 2020]. Available from: https://bvsms.saude.gov.br/bvs/saudelegis/gm/2015/prt1130_05_08_2015.html

Polit DF, Beck CT. Fundamentos de Pesquisa em Enfermagem: avaliação de evidências para a prática da enfermagem. Porto Alegre: Artmed; 2019.

Bardin L. Análise de conteúdo. São Paulo: Edições 70; 2016.

Taquette SR, Minayo MC. Analysis of qualitative studies conducted by physicians and published in Brazilian scientific journals between 2004 and 2013. Physis. 2016; 26(2):417-34. doi: http://dx.doi.org/10.1590/s0103-73312016000200005

Okido ACC, Zago MMF, Lima RAG. Care for technology dependent children and their relationship with the health care systems. Rev Latino-Am Enfermagem. 2015; 23(2):291-8. doi: https://doi.org/10.1590/0104-1169.0258.2554

Gomes GC, Mota MS, Moreira MAJ, Jung BC, Xavier DM, Silva CD. (Des) preparation of family member for the care of children with chronic illness. Rev Enferm UFPI. 2017; 6(1):47-53. doi: https://doi.org/10.26694/reufpi.v6i1.5737

Martins PL, Azevedo CS, Afonso SBC. The role of family in treatment plans and pediatric inpatient care in complex chronic health conditions. Saúde Soc. 2018; 27(4):1218-29. doi: https://doi.org/10.1590/s0104-12902018170402

Figueiredo SV, Sousa ACC, Gomes ILV. Children with special health needs and family: implications for Nursing. Rev Bras Enferm. 2016; 69(1):88-95. doi: https://doi.org/10.1590/0034-7167.2016690112i

Duarte ED, Silva KL, Tavares TS, Nishimot CLJ, Walty CMRF, Sena RR. Challenges of nursing care for children with chronic conditions in primary health care. Esc Anna Nery. 2015; 19(4):648-55. doi: https://doi.org/10.5935/1414-8145.20150087

Okido ACC, Cunha ST, Neves ET, Dupas G, Lima RAG. Technology-dependent children and the demand for pharmaceutical care. Rev Bras Enferm. 2016; 69(4):671-7. doi: https://doi.org/10.1590/0034-7167.2016690415i

Amorim LKA, Souza NVDO, Pires AS, Ferreira ES, Souza MB, Vonk ACRP. The nurse’s role: recognition and professional appreciation in the user’s view. Rev Enferm UFPE on line [Internet]. 2017 [cited Feb 20, 2020];11(5):1918-25. Available from: https://periodicos.ufpe.br/revistas/revistaenfermagem/article/view/23341/18945

Tavares TS, Sena RR, Duarte ED. Implications for nursing care concerning children discharged from a neonatal unit with chronic conditions. Rev Rene. 2016; 17(5):659-67. doi: https://doi.org/10.15253/2175-6783.2016000500011

Vaz JC, Milbrath VM, Gabatz RIB, Krug FR, Hirschmann B, Oliveira MM. Care for families of children with chronic disease. Rev Enferm UFPE on line [Internet]. 2018 [cited Mar 10, 2020];12(5):1397-408. Available from: https://periodicos.ufpe.br/revistas/revistaenfermagem/article/view/230852